SUPPORT ORGANISATIONS

SUPPORT AND HELP

Irish Child Bereavement Network

Tel: 01 6793223

http://www.childhoodbereavement.ie

Anamcara

Supporting parents after bereavement

Email: info@anamcara.ie

http://www.anamcara.ie

Now I Lay Me Down to Sleep: Photographers

A free professional photography service especially for families facing the untimely death of their baby. Remembrance photography is a very important step in the healing process. This wonderful service is available for free for Irish families.

www.nowilaymedowntosleep.org

www.feileacain.org/remembering/now-i-lay-me-down-to-sleep-photographers/

Laura Lynn House

The Laura Lynn hospice is the first hospice in Ireland to offer services to children with life-limiting conditions. Parents can avail of support in bringing children home from hospital after birth, medical care at home, and end-of-life care.

Tel: 01 2893151

Home

SOFT Ireland

Set up by parents for parents of Trisomy children, SOFT, the Support Organisation for Trisomy, in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome (Trisomy 18) and related chromosomal disorders. Support is provided during prenatal diagnosis, during the child’s life and after the child’s passing.

Tel: 1800 213 218

http://www.softireland.com

Féileacáin

Féileacáin (Stillbirth and Neonatal Death Association of Ireland – SANDAI) is a non profit organisation that aims to offer support to anyone affected by the death of a baby during pregnancy or shortly after. Féileacáin provide hospitals with memory boxes to be given to bereaved families.

www.feileacain.ie

Irish Neonatal Health Alliance

Tel: 085 192 0602

http://www.inha.ie/

Irish Hospice Maternity Network

Tel: 085 192 0602

http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/hfh-networks/maternity-network/

International Trisomy Alliance

We are a volunteer, not-for-profit organization focusing on trisomy 13 and trisomy 18, (also known as Patau and Edwards syndromes respectively). Our mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information and resources, and to be a mechanism for sharing between groups.

www.internationaltrisomyalliance.com/

Perinatal Hospice

A wonderful support service for families facing a poor diagnosis for their baby. The perinatal hospice service gives parents the gift of time by offering the best possible medical and professional support to everyone involved, and allowing parents to create precious memories of their time with their special children.

www.perinatalhospice.org

Anencephaly.info

Information about the life-limiting condition, anencephaly, which arises while the child is in the womb. Help is offered for affected parents, caregivers, family and friends.
www.anencephalie-info.org

Be not afraid

Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. There are many inspiring stories of children whose short lives touched so many people.
www.benotafraid.net

TAG – Trisomy Advocacy Group

Trisomy Advocacy Group (TAG) is an organization advocating for the Trisomy community by empowering families and the medical community to make informed decisions regarding the care of Trisomy children.
www.trisomyhelp.org

Every Life Counts

Every Life Counts is a support network for families whose child is diagnosed with a Life Limiting Condition. It currently comprises of over 54 families and that is growing all the time.

 

Journey

Perinatal Hospice Care is firstly a philosophy of care and an approach to medicine. READ MORE

Perinatal Care Team

Perinatal Hospice Care is not something that is delivered by one person or even one specialty. READ MORE

Support Organisations

This is where you can get help and support if you receive a diagnois for your baby READ MORE

Philosophy of Care

This care is a type of medical care, designed to care for those families who are given such heartbreaking news. READ MORE

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